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A community of cancer survivors supporting each other.

Members that Andrew C Supports

Chris B

Chris B
Bio: I'm a 53 year old husband and father of 2 great sons.
Cancer Type: Tonsil Cancer
Stage of Cancer: Stage 4
Cancer Symptoms: Lump in neck, slight sore throat
Surgery Description, Dates & Side Effects: Robotic tonsil and tumer removal and Neck disection to remove lymph nodes
Chemotherapy Description, Dates & Side Effects: 3 treatments. Cisplatin at first but had terrible digestive side effects so used erbitux for last 2 treatments

Barbara

Barbara
Bio: I was diagnosed with tonsil and breast cancer in early December 2010. I had left neck resection to remove almost 100 nodes on Dec 6, 2010 and underwent IMRT and Cistplatin from Jan 17 through March 8, 2010. …more
Cancer Type: Tonsil Cancer
Stage of Cancer: Stage 4
Cancer Symptoms: Swelling on left neck found one morning in November 2010
Surgery Description, Dates & Side Effects: December 6, 2010 left neck resection..
Chemotherapy Description, Dates & Side Effects: Cisplatin ....nausea and fatigue

Mike Rada

Mike Rada
Bio: Male 52 year old Clinical Research Associate. Pack a day 30 year smoker. Started with a innocuious lump on my left neck below jaw line. Self medicated with a Z-Pak that did nothing and went to urgent care…more
Cancer Type: Tonsil Cancer
Stage of Cancer: Stage 4
Medical Term for the Type of Cancer: Poorly Differientated Basiloid Squamos Cell Carcinoma
Cancer Symptoms: Lump on left neck didn't change in size or color or pain level even after antibiotics
Surgery Description, Dates & Side Effects: Tonsillectomy (3rd set which I didn't know we had these are below your adenoids and normal tonsils you cant see)which for an adult is a horrible experience however bad they tell you it is multiply it by 5, plus a…more
Chemotherapy Description, Dates & Side Effects: 1st one today 26-April-2010 Slight nausea, headache and heart burn so far so good 2 more to go 3 weeks apart. 2nd was uneventful opted for the 3rd one while throwing up in the sink in the corner of…more

Kerry

Kerry
Cancer Type: Tonsil Cancer
Stage of Cancer: Stage 4
Medical Term for the Type of Cancer: SCC tonsil mets
Cancer Symptoms: Misdiagnosed for 2 years...sore throat, feeling of something in throat, gagging. Diagnosed with reflux..UGHHHHHHHH- stage 4 when properly diagnosed.
Surgery Description, Dates & Side Effects: Diagnosed in August 2011, T&A and uvulectomy, excision and biopsies, 9 places, 6 were positive, FNA neck node, PEG 01-2012, 28 teeth removed prior to radiation
Chemotherapy Description, Dates & Side Effects: 3 Cisplatin mega doses, 100 units per time, 6 hour chemos

Sandyjo

Sandyjo
Bio: Updated 1/10/15 - It has been 4 years of being cancer free!!! Last radiation was end of May 2010 and Surgery to remove remaining cancer was mid December 2010! Still have the side effects including lack of saliva Missing…more
Cancer Type: Tonsil Cancer
Stage of Cancer: Stage 4
Cancer Symptoms: sore throat & I thought I had a swollen gland - cancer was right tonsil, lymph nodes and back of tongue
Surgery Description, Dates & Side Effects: Removed remaining tonsil with cancer cells, a spot on my tongue, lymph nodes and one saliva gland - December 15, 2010. I could nto get my mouth open far so they had to cut through jaw & neck. …more
Chemotherapy Description, Dates & Side Effects: Cetuximab - Brand name: Erbitux - April 1, 2010 - so far just really really tired. I was told later a rash and other stuff could happen. ( 5/1/10 - rash did…more

Pat C

Pat C
Bio: Pat C. Male age 54
Cancer Type: Tonsil Cancer
Stage of Cancer: Stage 4
Medical Term for the Type of Cancer: Squamous Cell Carcinoma
Cancer Symptoms: Ongoing sore thoat - Was thought to be infection, then abscess then tonsil stone. Not until tonsilectomy was cancer discovered.
Surgery Description, Dates & Side Effects: January 17, 2011 - Tonsilectomy - Ouch for 2 weeks lost 10 pounds but got through it.
Chemotherapy Description, Dates & Side Effects: February 25, 2011 - Cysplatin (Cisplatyn) I don't know 4 of 8 weeks only as it ruined my throat way early and did it's job - according to the dr.

Kevin

Kevin
Bio: I'm Kevin, diagnosed October 30, 2012 with Tonsil Cancer. (Didn't even know there was such a thing.) After finding this site I don't feel so alone. Healing now from Tonsillectomy surgery on Novemder 14th (wow do things happen fast.) Soon…more
Cancer Type: Tonsil Cancer
Stage of Cancer: Stage 4
Medical Term for the Type of Cancer: Invasive Squamous Cell Carcinoma (HPV)
Cancer Symptoms: Swelling on right side of neck (Lymph nodes) swollen right tonsil. Went through antibiotics twice in 1 month. with no positive results. Sent to see E.N.T. Catscan next day DR. looks over scan and says your going in for surgery.…more
Surgery Description, Dates & Side Effects: 1. Tonsillectomy, November 14, 2012. The pain in my throat, ear pain, headaches and alittle depression. 2. Port A Cath Surgery December 28th. 3. Peg Feeding Tube Surgery Feburary 14, 2013
Chemotherapy Description, Dates & Side Effects: Chemotherapy (Cisplatin) Treatments January 14th through March 4th 2013

Laura For Michael

Laura For Michael
Bio: I am a mom of a now 24 year old son, Michael, who has been recovering from brain cancer for over 11 years. I understand how horrible cancer is and have written a book called, "Michael's Journey", to inspire…more
Cancer Type: Brain Cancer
Stage of Cancer: Stage 1
Medical Term for the Type of Cancer: Astrocytoma
Cancer Symptoms: None
Surgery Description, Dates & Side Effects: Emergency brain surgery on June 12, 2004 After surgery Michael had a stroke. Now uses a walker.

James

James
Bio: My name is James. I have a wonderful wife named Jenny and three children: Jonah, age 8. Jamie, age 17. Justin, age 25. It would appear that I have Tonsil Cancer. I have not yet begun treatment.
Cancer Type: Tonsil Cancer
Stage of Cancer: Stage 2
Medical Term for the Type of Cancer: Squamous Cell Carcinoma
Cancer Symptoms: One swollen, painless tonsil - diagnosed as strep throat. Did not respond to strep treatment. Had dentist look at it, he said "it looks a little swollen"... that did not satisfy me, I called an ent and made an appointment.
Surgery Description, Dates & Side Effects: None
Chemotherapy Description, Dates & Side Effects: 3 five hour Cisplatin sessions, every three weeks, starting Monday, November 7th 2011

Brian

Brian
Bio: I am 51 years old and I have been in the safety business for about 25 years. I currently work with a large Colorado County government in the Risk Management Department as the Safety and Workers Compensation Administrator. …more
Cancer Type: Tonsil Cancer
Stage of Cancer: Stage 4
Medical Term for the Type of Cancer: HPV related squamous cell carcinoma
Cancer Symptoms: I thought I had a cold and a minor soar throat. Went into my doctor who thought I had tonsillitis and gave me two weeks of antibiotics. I took them and they didn't help. He referred me…more
Surgery Description, Dates & Side Effects: Surgery was done December 27th. Removal of right tonsil and neck dissection removed 34 lymph nodes which 3 were were positive. There are some slight issues with my shoulder and arm not having full range of motion but this…more
Chemotherapy Description, Dates & Side Effects: Begin Erbitux treatments February 13 2012 and finished on May 2nd.
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Vital Info

Posts

January 4, 2011

matthews, North Carolina 28105

January 16, 1956

Cancer Fighter

Cancer Info

Tonsil Cancer

July 4, 2009

Stage 4

3.1 - 4.0 cm

Positive

No

Yes

Everything but especially the mental and emotional impact to my family.

Maybe my experience can benefit someone else more then it has me

Clinical trial started Feb 2012

Started clinical trial Feb 2012" Genteach trial MPDL3280a, protocol # PCD4989g. Anti body, I am their first head and neck cancer participant. Trial is being run at various locations in the U.S., I am in the Huntersville N.C. Trial. They are looking for more head, neck or cervical cancer patients to participate. Especially HPV related.

Carolina BioOncology Huntersville N.C. 704-947-6599

Having an advocate to deal with the insurance companies, doctors and hospitals is essential. My wife Hildi has been my greatest advocate and the one who researches everything and knows all the medical terms, treatments,etc. I could never do it without her.

I felt as if a had to constantly clear my throat and had trouble sleeping on my left side or back. I was originally diagnosed with sleep apnyea in 2008 and it was only a year later during a visit to mu chiropractor that he noted an enlargement of my right tonsil. I consulted my GP doctor and my dentist who only asked if it hurt, it didn't, and said they would not recommend getting my tonsils out at age 53. It was 3 months later that I had any pain and finally went to an ENT specialist who sent me for the tests that revealed the cancer.

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